UHN Expert Shares New Hope for Parkinson's Patients

When tremors first start or walking becomes harder, a Parkinson's diagnosis can feel like the end of normal life. But Dr. Susan Fox at University Health Network's Krembil Brain Institute wants patients to know they're not alone, and better treatments are coming.

Parkinson's disease is best known for causing uncontrolled shaking and tremors, but the condition affects much more than movement. Patients may struggle with daily tasks like getting groceries or visiting friends, which can chip away at confidence and independence.

That's why Dr. Fox and her team focus on the whole person, not just the symptoms. They work closely with families to monitor how patients are functioning and feeling, ensuring they can still live life to the fullest after diagnosis.

The condition affects people from all walks of life, including celebrities like Michael J. Fox, who was diagnosed at just 29 years old. He went on to become a global advocate and launched a foundation dedicated to Parkinson's research and awareness.

One surprising symptom many people don't know about is hallucinations. Patients might see people, animals, or shadows that aren't there, or experience unusual sounds or smells.

Dr. Fox emphasizes that patients shouldn't suffer in silence with these or any other symptoms. Proper treatment is available, and open communication with care providers is key.

The Ripple Effect

UHN has created something special called the Patient Advisory Board, where people with Parkinson's share their experiences directly with researchers. Every patient's symptom combination is unique, and what they learn today could help someone with identical symptoms five, ten, or twenty years from now.

This collaboration between patients and experts is creating a growing library of knowledge that's helping doctors understand what works and what doesn't. Each person who participates is directly contributing to better care for future patients.

The partnership shows how powerful it can be when bright minds work together with patients and donors to redefine healthcare.