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Billionaire Dan Gilbert is pouring $50 million yearly into rare disease research after losing his son Nick to neurofibromatosis. His foundation has already helped create the first FDA-approved treatments for the incurable genetic disorder.
After losing his oldest son Nick to neurofibromatosis, billionaire Dan Gilbert is pouring $50 million annually into research for the rare disease that affects 170,000 Americans. The Gilbert Family Foundation has turned grief into action, raising $12 million in a single night while creating lasting tributes that keep Nick's memory alive.
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Cleveland Cavaliers owner Dan Gilbert is pouring $50 million every year into research for neurofibromatosis, the rare genetic disorder that took his son Nick's life at age 26. His grief has transformed into a mission to wipe the disease off the planet.
Years of relentless fundraising by an Australian family living with neurofibromatosis has led to a breakthrough discovery that could transform treatment into something as simple as diet changes or probiotics. Melbourne researchers found crucial gut bacteria differences in NF1 patients, opening doors to affordable therapies for cognitive and behavioral symptoms.
Years of tireless fundraising by teacher's aide Zoe Petropoulos and her family have helped fuel a breakthrough that could transform treatment for a genetic disorder affecting thousands. The discovery could lead to treatments as simple as probiotics.
A nonprofit foundation is turning abandoned pharmaceutical treatments into life-saving therapies for children with rare diseases. Their first rescued drug just won FDA approval and sparked a $3.4 billion acquisition.
AnnaMari Smith, 14, went completely blind during middle school but kept thriving as a student. Ohio just honored her courage with a statewide achievement award.