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Pearl Jam's Eddie Vedder and Canadian director Matt Finlin created a documentary following the race to cure epidermolysis bullosa, a devastating skin disease affecting children worldwide. The Netflix film captures breakthrough research that could unlock treatments for thousands of rare diseases.
A rare disease nonprofit co-founded by Pearl Jam's Eddie Vedder is revolutionizing medical research by acting like a venture capital firm, turning every dollar into multiple cures. Their innovative funding model has already contributed to three FDA-approved treatments for a devastating skin disease that once had no hope.