
Congress Approves Historic $315M for ALS Research
The U.S. just approved the largest federal ALS research budget in history at $315 million. New treatments targeting the disease's root causes are showing real promise for the first time.
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The U.S. just approved the largest federal ALS research budget in history at $315 million. New treatments targeting the disease's root causes are showing real promise for the first time.

Golf star Brooks Koepka is fulfilling his $5 million charity pledge by supporting causes from children's healthcare to ALS research. Among the recipients is a foundation started by a 30-year industry veteran recently diagnosed with Lou Gehrig's disease.

Grey's Anatomy star Eric Dane turned his ALS diagnosis into a powerful mission, raising over half a million dollars for research before his death at 53. His final months moved the needle forward for thousands battling the rare disease.

A breakthrough drug called AMX0035 is giving hope to 35,000 Americans living with ALS by significantly slowing the disease's progression. Research advances at Columbia's ALS Center are helping patients live longer with better quality of life. ##

Spanish researchers discovered a cellular cleaning system that weakens in ALS patients, offering the first potential target to slow this devastating disease. The breakthrough came from studying donated tissue from patients who helped advance research even in their final years.

Researchers developed an AI model that predicts how ALS affects the nervous system, potentially reducing the need for animal testing while speeding up treatment discoveries. The breakthrough combines computer simulations with real-world biology to guide more precise research.

After decades of slow progress, ALS researchers at VCU Health say they're more optimistic about finding a cure than at any point in history. The Richmond team is combining new FDA-approved treatments with cutting-edge research to extend lives and find solutions.

Tim Evans, diagnosed with ALS in 2014, chose to become the first volunteer in groundbreaking research at Johns Hopkins Medicine instead of letting his disease define his final chapter. His decision could help improve quality of life for thousands of ALS patients diagnosed each year.

Northwestern Medicine researchers discovered how to help mice with ALS live longer and stay stronger by targeting a protein that was accidentally protecting toxic buildup in their cells. The breakthrough opens a new path for treating multiple brain diseases.

Researchers have successfully grown specialized brain cells that die in ALS and get damaged in spinal injuries, opening new doors for treatment. For the first time, scientists can reliably create these rare corticospinal neurons in the lab.

Researchers in Belgium discovered how a common molecule called spermidine can restore damaged neurons in ALS, offering fresh hope for treating this devastating disease. The breakthrough could guide the development of new therapies for patients with amyotrophic lateral sclerosis.

Aaron Nola pitched on Lou Gehrig Day for the first time, striking out eight batters to raise $12,000 for ALS research through his personal campaign. The Phillies pitcher donates $1,500 per strikeout to honor his uncle who died from the disease in 2021.

Researchers at Mayo Clinic are turning groundbreaking genetic discoveries into real treatments for ALS and dementia patients. New diagnostic tools, AI-powered voice technology, and targeted therapies are giving families fresh reasons for hope.

Actor Eric Dane spent his final months fighting for ALS research funding before passing away in February 2026. His advocacy helped push critical legislation forward that could lead to a cure for the devastating disease.

A University of Missouri researcher found a way to deliver healing molecules past the brain's protective barrier, improving ALS symptoms in mice. The breakthrough could lead to human trials that might one day prevent the disease before symptoms start.

A bipartisan bill reauthorizing critical ALS research funding moved forward in Congress, championed by advocates including the late actor Eric Dane and a patient who's lived eight years beyond his six-month prognosis. The legislation supports development of investigational drugs and clinical trials that could finally crack this devastating disease.

Major League Baseball unites all 30 teams on June 2 for the sixth annual Lou Gehrig Day, honoring the legend while raising critical funds for ALS research. Players will wear special "4" decals and red wristbands as baseball communities nationwide celebrate progress in the fight against Lou Gehrig's disease.

A man diagnosed with ALS on Valentine's Day 2014 chose to become the first volunteer in a Johns Hopkins study aimed at improving quality of life for others with the disease. Instead of waiting at home, Tim Evans is dedicating his remaining time to advancing research that could help thousands.

Scientists at Stanford just received $13 million to use cutting-edge artificial intelligence to uncover the hidden genetic causes of ALS, a devastating disease that currently has no cure. They've already discovered one new gene and hope to find many more targets for future treatments.

Leading autism researchers and advocates formed a new independent committee to guide autism research priorities and counter recent federal changes. The group aims to unite the autism community and protect evidence-based research as funding reaches $568 million annually.
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