2 results for "rare disease advocacy"
🧘 Health & WellnessSarcoma Survivor Helps 9,000 Patients Fight Rare Cancer
After surviving a rare and misunderstood cancer twice, one man built a support network that has reached 9,000 sarcoma patients across India. His mission: ensure no one fights this lonely battle alone.
🧘 Health & WellnessLove, Hope, and Community: A Family's Inspiring Journey with Huntington's Disease
Heather and Nathan Wilmoth are turning their Huntington's disease diagnosis into a powerful advocacy mission, raising awareness and inspiring hope. Their story showcases the remarkable strength of the HD community and the promising advances in treatment research that are bringing new possibilities to families worldwide.